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Focused on You: Black Women and Breast Cancer

October is Breast Cancer Awareness Month, and Dr. Bonita Coe explains why screenings and lifestyle changes are so important for Black women disproportionately impacted by the cancer.

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October is Breast Cancer Awareness month. According to the Breast Cancer Research Foundation (BCRF), breast cancer is the most common cancer found in women worldwide, and one of the most common cancer diagnoses for women in the United States — second only to non-melanoma skin cancer. Despite the good news that related death rates have been on the decline for decades (down 44% since 1989 due to treatment advancements and early detection), not everyone has the same access to preventive and early detection health care and treatment. While breast cancer incidence (new cases) rates among Black and white women are similar, mortality rates are markedly different.

 A recent American Cancer Society (ACS) report, “Breast Cancer Facts & Figures, 2024-2025,” found that Black women have a 5% lower breast cancer incidence than white women, but a 38% higher mortality rate. Black women also have the lowest survival rate for every known stage of breast cancer. In fact, the “Disparities in Breast Cancer: African American Women” report from ACS found that Black women have the highest death rate of all racial and ethnic groups. Further, Black women are disproportionately impacted by more aggressive subtypes of the cancer and they are more likely to be diagnosed at younger ages and at more advanced stages of the disease. 

Headshot of Dr. Bonita Coe
Dr. Bonita Coe.

Why the disparities? According to Dr. Bonita Coe (M.D. ’94), later diagnosis and less access to high-quality treatment play a major part. 

“Many elements of the social determinants of health (SDH) impact access to care and the elements affected negatively by structural racism and discrimination leading to lower socioeconomic and educational status are a large contributor to the disparity in death rates,” explained Coe. In addition, lifestyle and behavioral habits and chronic stress are also factors affecting breast cancer incidence rates in Black women.

There are many types and subtypes of breast cancer, and if you have breast cancer, you may not have any symptoms. “This is why screening and early detections is very important,” she explained.

In this special edition of the Focused on Youseries, Coe outlines some symptoms to look out for and related risks, offers advice for screenings and prevention, and shares additional resources to help women be their own advocates. 

What is Cancer? 

According to ACS, cancer is a “group of diseases characterized by the uncontrolled growth and spread of abnormal cells that can result in death if untreated.” While the causes of most cancers are unknown, the organization points to lifestyle factors and inherited genetic mutations, which can increase risk “either by acting alone or in combination, to initiate and/or promote cancer growth.” 

Coe notes that most breast cancers begin in the “milk” producing glands (lobules) or tubes (ducts) of the breasts that connect to the nipple. 

Symptoms that a woman can see from breast cancer are related to changes in the glands or ducts of the breast that result from a growth from those areas that can cause a lump or skin changes.    

Signs and Symptoms of Breast Cancer

The most common symptoms of breast cancer are a lump or mass in the breast, in addition to other persistent changes to the breast, including swelling skin, redness, skin thickening, and nipple abnormalities (i.e.  discharge, flakiness, or pulling of the nipple). 

Other Symptoms of Note:

  • Dimpling of the breast skin
  • Pain in the nipple area
  • Change in size or shape of the breast
  • Pain in any area of the breast

Remember that breast cancer can still be present when there are no symptoms at all.

Breast Cancer Risks

Being assigned female at birth: Those assigned female at birth are at significantly higher risks of developing breast cancer than those assigned male at birth. However, men can get breast cancer too.

Age: For most patients, regular screenings are recommended beginning at the age of 40. However, breast cancer is more common in African American women under the age of 40, and African American women are also more likely to die from breast cancer regardless of age. 

It is important to talk to your doctor about your personal medical history and family history to determine if breast cancer screening should begin for you before age 40.

Personal/Family History: A history of breast cancer in your family increases risks. For example, BRCA1 and BRCA2 genes, the most common genetic mutations, though there are others, increase the risk of developing cancer. 

Family members are often reluctant to discuss their personal medical issues, but knowing family conditions in parents, siblings, grandparents, aunts, uncles, and even cousins can make a big difference in determining your risk for breast cancer and whether alternative breast cancer screening recommendations are applicable for you.

If your mother, sister, or daughter is diagnosed with breast cancer, especially if they are under the age of 50, this can indicate a high risk for also developing the cancer. In addition, having two family members from the same side of the family diagnosed at any age, a father or brother with breast cancer, and the presence of any other types of cancer in the family also place you in a higher risk category.

If family members are reluctant to discuss their medical conditions, Coe recommends this talking point: “My doctor has told me that it is important to know family medical history, not only for myself, but for the younger adults and children in our family to know how to better take care of themselves as they get older.”

Knowing your family history is key to determining if you need more than annual mammograms for breast cancer, starting at age 40. Genetic testing may be recommended based on family history.

Check with your city, county, and state health departments, as many departments across the country have low cost or free mammogram programs. There are also related resources specifically for the Black community, including The Black Genes Matter Movement, which provides education and resources to help people better “understand their genetic makeup and make informed decisions about their health.” 

Lifestyle Risks: It’s not surprising to learn that things like higher alcohol usage, a diet that is high in red meat and processed foods but low in fruits and vegetables, and a lack of exercise and being overweight impact overall health and also increase risks related to developing cancers, including breast cancer. Unlike risks you can’t control (age, gender at birth, family history, inherited genes), these risks can be minimized with lifestyle changes.

Smoking is a huge risk for developing most cancer types. For someone who smokes, quitting goes a long way in decreasing overall cancer risk.

Other Factors: Starting your period early or experiencing menopause later than “normal” could be linked to developing breast cancer, as could things like having dense breast tissue, being diagnosed previously with a benign breast condition, or having received radiation to the chest. While these are not all red flags, the normalcy of them further emphasizes why screenings are so important. 

It is important to discuss the factors in your medical care that may increase your risk for breast cancer and work on changing the risks that you can do something about.

Breast Cancer Awareness Month - Stock Photo

Screenings and Prevention 

Again, women at average risk for breast cancer should start receiving annual breast cancer screenings at the age of 40. However, if you are at a higher risk of developing breast cancer, especially those with a known family history, screenings may need to happen earlier, in addition to possibly genetic testing, seeing a genetic counselor, and getting more frequent mammograms and/or MRI’s of the breast.

Talk to your doctor about whether seeing a genetic counselor or getting genetic testing is appropriate for you. Depending on family history and genetic testing results, breast cancer screening may need to start as early as age 25-30 with clinical breast exams (a breast exam done by a health care professional), mammograms, and/or breast MRI’s.

While not a substitute for annual mammograms, regularly performing “self-exams” are one way to identify any changes in your breasts that may lead to early detection. BreastCancer.Org offers five steps for checking your breasts at home, including conducting the examination in the mirror with hands on hips, raising arms above the head, looking for signs of swelling, feeling for lumps while laying down, and feeling again while standing or sitting.

Coe recommends having a breast exam reminder card in the shower or setting a monthly alarm on your phone for a reminder to do self-breast exams. Doing a regular self-breast exam allows you to get to know what your breast tissue feels like and makes you more likely to notice a change in your breasts. Self-breast exams should be done one week after the period of menstruation has ended, as breast tissue can be lumpier or tender during menstruation. According to the doctor, while mammograms and breast MRI’s drive most breast cancer screening, the detection of a breast mass that one can feel is defined as a symptom that requires immediate evaluation. Breast masses are often first noted by the patient themselves (patient self-detection) or during a clinical breast exam.

Unfortunately, many of us know someone who has been or will be diagnosed with breast cancer. According to the most recent estimated numbers from ACS for the US in 2025, approximately 316,960 new cases of invasive breast cancer will be diagnosed in women and 2,800 in men, with an estimated 42,680 deaths. While these numbers are sobering, with early detection many of those diagnosed have an increased chance of survival. However, women, especially Black women, need to prioritize screenings and lifestyle changes. 

The gap in breast cancer occurrences and outcomes related to Black women are complex, with social, economic, geographic, and lifestyle factors contributing to the disparities. As indicated in the BCRF article outlining these disparities, Black women are statistically more likely to also be diagnosed with diabetes, heart disease, and obesity and are less likely to breastfeed their children, all of which are, again, risk factors for developing breast cancer.

“You must make health a priority. Everything in life hinges on good physical and mental health,” said Coe. “Working toward achieving optimal health includes making the necessary lifestyle changes and getting recommended screenings. Specifically, keeping up with breast cancer screening is making sure that you are doing the best that you can do for your breast health today and in the future.”

What Can We Do? 

According to the National Cancer Institute, though difficult to address due to the many impacting factors, disparities in cancer care can be improved by creating statewide cancer screening programs that are accessible to underserved populations. Further, addressing the biological differences in breast cancer across racial and ethnic groups would go a long way. 

Disparities in participation in clinical trials also contribute to the less than optimal care Black women receive after being diagnosed with breast cancer.

“We need more Black women with breast cancer and also healthy volunteers to participate in clinical trials,” explained Coe. “Your doctor and ClinicalTrials.gov are good resources to find clinical trials that you can participate in. Research needs our participation to contribute to medications and therapies so that we all can benefit from care that we may need now or in the future.”

It is important for Black women, and all people, to be their own health advocates and active participants in their care. The key for breast cancer screening is early detection.

 

This is an overarching theme to the book published by Coe in November 2024, entitled “How To Help Your Doctor Help You: A Guide for Men and Women to Manage Health Proactively.” As a practicing primary physician, Coe has seen many adult patients who struggle with “burgeoning chronic medical conditions and illnesses.” Noting that patients often feel frustrated trying to juggle busy lives while striving to maintain a good quality of life, she understands that maintaining and advocating for one’s health is not easy — but it can be done.

Coe wrote this self-help book to give detailed information about how to proactively help you care for yourself and help your physician/provider care for you in a more substantial way. Learn more at https://besthealthforyourlife.com/.

JUST THE FACTS: BREAST CANCER DISPARITIES FACT SHEET